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Bears Boy philosopher chef (216.228.92.38) on 8/4/2021 - 7:43 p.m. says: ( 31 views , 11 likes , 2 m0nKey )

"birthday boy Alex turned 5 today.....hard to believe he started"

kindengarden today....doing very good....only goes to Children's Hospital in the ham once a month for iron supplement....   still on nourishment device in chest and port going into his tomach to drain liquids build up.......bladder working better- only has to cauther periodically....he now goes almost 10 hours without being hooked up to nourishment IV....medical team saw him in the spring and said he is doing very well for an MMIHS patient....wont do anything drastic until around age 15 unless an emergency pops up.

oh, and he still hates the barn with the fire of a thousand suns.

 

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